and what a ride it was!
I said I was Parky-brained. In my first day-3 post I didn’t say anything about my arrival at the Travelodge where we’re staying. When I finally arrived, almost out of juice, I was met by a line of cheerleaders – some from our travelling road show and a large cohort from the local Parksville/Qualicum support group. Doug Pickard, with his endless energy, had recruited and organized a well oiled welcoming machine. But wait, there’s more. There was the presentation of a cheque for more than $1000 from a recent garage sale and a potluck meal that couldn’t be beat.
If you’re going to get Parkinson’s, you could do much worse than to be living in Parksville/Qualicum.
Here are some pictures that Doug sent me.
Welcoming committee at the Travelodge entrance.
Definitely a sight for sore eyes!
Alf and Brett Arriving.
Alf arriving with Grandson — no, wait — It’s Brett…
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I am joining with the jitters for the last 250km . Ride safe Kevin you brave Parky! See you Wednesday
The count down widget on the web-site now shows less than 24 hours until lift off… drive off? … roll off? … whatever. We leave in less than a day on a 500 km trek down Vancouver Island. It seems a long way to go sitting astride 15 kg or so of bicycle. That’s about 35 kliks per kilo of bike. The Apollo 11 team did about a million kilometres in something that started at 300,000 kg so they only got 3 km/kg. OK, if you only include the 6000 kg that came back to Earth it’s more like 200 km/kg. It was a lousy comparison anyways but I had to get back at the people who measure everything in units of olympic-swimming-pools.
Anyways, I wanted to talk about Parky jitters. Now that may sound redundant. Wouldn’t a “parky without jitters” be an oxymoron? Ha, ha! Not all parkies have…
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If you’re thinking of starting your own women’s support group, you may want to chat with some of the women’s group representatives who will attend The World Parkinson Congress (WPC) on September 20-23. Each one of them has experience in community-building for women who have Parkinson’s disease. They plan to meet at WPC at a time and location to be announced, and they would be delighted to share their experiences about building women’s support groups with WPC attendees.
Some representatives planning to attend WPC include:
Representing the Los Angeles area, Inspired Women with Parkinson’s in Los Angeles is a group organized by Sharon Krischer. Krischer started a blog, Twitchy Woman: My Adventures with Parkinson’s Disease to encourage the exchange of ideas and solutions with others living with Parkinson’s. The support group was a natural next step after Sharon attended the Women & Parkinson’s Initiativeconference sponsored by the Parkinson’s Disease Foundation (PDF). The group…
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In a few weeks it will be my official 3rd anniversary with a diagnosis of idiopathic Parkinson’s disease. It wasn’t a surprise to me and as with most of us I initially felt more relief than anything as I had been told I had Parkinsonism symptoms three years prior to my official diagnosis.
What has transpired in the three years? Well being in the healthcare profession, a physiotherapist for 29 years I researched PD and think I am very close to getting my PHD!
I am stuck at present. I am an advocate for my local PD family but I have not gone any further. I have attended workshops with the MDS on the latest outcome measures in the treatment of PD. I am a PWR! /Exercise 4Brain Change clinician and have started an exercise class for my local PD family. I have networked and met many PWP. We are all…
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