I have had a very busy November, 2012. What have I been doing? Educating myself about Parkinson’s Disease. I have Parkinson’s Disease. My first symptoms started as a tremour when I was 45 in 2005, then dystonia ; single limb focal point dystonia in 2006 of my right dominant arm. In 2007 I was told I had parkinsonian symptoms and was given artane by a neurologist to see if it would lessen my tremour. It didn’t. Time out for anterior discectomy and fusion of C4/5 in 2008. In late 2009 I was prescribed my first sinemet. It had immediate effects. My tremour disappeared. I was referred to a MDS in Vancouver. On Feb.3 2010 I was diagnosed with Parkinson’s Disease at age 50 and started on sinemet 100/25 CR. I responded well to the sinemet and physically felt better. My quality of life was better. I continue to take sinemet 200/50CR at present and continue to rely on the pills to improve my quality of life.
I am a physiotherapist. I stopped seeing patients in 2008 and retrained in Disability Management at the National Institute for Disability Management and Research. I went back to work in the field of disability management doing rehabilitation claims for Sun Life Financial. I was and still am a physiotherapist. I stopped working in 2011 due to great fatigue and inability to use the keyboard fast enough to do my job duties. I was getting much dystonia from the activity. Since then I have been studying Parkinson’s Disease as a healthcare professional. I have Parkinson’s Disease but I am also a physiotherapist.
This past month I have taken Becky Farley’s clinician course PWR/Exercise4Brain Change, attended a one day workshop with the MDS on Evidence Based Medicine Update on Treatments for Parkinson’s Disease and attended a one day YOPD conference sponsored by the BC Parkinson’s Society. I continue to volunteer in my local community helping PWP with a Falls Prevention Clinic which includes follow up on the patients who need help in their homes.
Have I become too Parkinson’s? Someone told my husband that it is great what I have been doing however I need to be careful not to become too Parkinson’s. I listened to the neurosurgeon speak at the YOPD conference report on his outcomes after DBS and he said one patient came in for follow up and told him he took away his PD symptoms but ruined his life. He didn’t know how to live without his PD after living with it for 15 years.
I am perplexed. What does too Parkinson’s mean to someone living with PD? Can you be too pregnant? Can you be too focused on your cancer diagnosis? Too much a physiotherapist? Too deaf? Too much a parent? Too much a spouse? Too??
Parkinson’s is a chronic neuro degenerative disease that has no cure. In other words I am going to die with Parkinson’s Disease. I want to learn as much as I can about Parkinson’s so it can become my best friend instead of my biggest enemy. I want to have the best quality of life I can with PD.
Am I too Parkinson’s?